Ehlers-Danlos Syndrome services

EDS UK

EDS UK provide advice, information, and support to people with EDS, family members, friends, and medical professionals all around the UK. Read more

Ehlers-Danlos Syndrome Local Support Group

Next meeting Wednesday 28th February 2018 6.30pm - 8.30pm at Community Learning Centre, Brookfield Community School, Brook Lane, Sarisbury Green, Southampton SO31 7DU Read more

Healthtalk

A website patient information sharing resource Read more

Latest

Parking charges and concessions at University Hospital Southampton

Click here to find out details of all parking charges at University Hospital Southampton and who qualifies for concessions/free parking or transport.

Blue Badge scheme to be extended to people who have less visible disabilities, making journeys more accessible

From 30th August 2019, people with hidden disabilities will be able to access Blue Badge parking permits, thanks to the rollout of new guidance on June 16 2019.

Free Priority Service Register (PSR) from SSEN

Scottish & Southern Electricity Networks provide a free Priority Service Register (PSR); this is to register vulnerable people on their system. In turn, this allows them to highlight PSR customers when there is a fault, or if there are planned power outages. This alerts them, so they can visit them and check if any requirements are needed. There is also a free phone number whereby, once registered, they can call and not queue for a quick response to any worries about their power.

50 to 80 percent of people in the UK with Parkinson’s will develop dementia

The University of Southampton School of Health Sciences are undertaking a new international study (in collaboration with Parkinson’s UK) on the needs and experiences of people with Parkinson’s and carers of people with Parkinson’s as well as healthcare professionals and other stakeholders. The researchers would love to speak to people who are family carers to find out your experience of living with Parkinson’s and how you use resources and support.

Carers Cards

Save you money out and about and recognise your caring role

Carers Assessments

Current newsletter

News of events and services

Contact us

How to get in touch with us

Emergency planning

Guidance on writing a plan for someone else to follow if something unexpected happens to you or if you are unable to carry on with your caring role due to a hospital stay, overseas family event etc.

How can we help?

Click to find quick links for free support, guidance, signposting, information, carers cards and carers assessments for carers

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What do we mean by carer?

Club night for adults with learning disabilities

A club night especially for adults with learning disabilities at The Edge

Professional referral

Buzz Network

The Buzz Network is a group for Southampton parents/carers of children with disabilities/special needs. It is open to children with any disability from ADHD to visual impairments, as long as they meet the eligibility criteria.