Myositis UK

146 Newtown Road
Woolston
Southampton
SO19 9HR
United Kingdom
Telephone: 023 8044 9708
E-mail: [email protected]
Website: https://www.myositis.org.uk/

Supported Diseases

Amyopathic dermatomyositis

Synonyms: ADM, Dermatomyositis sine myositis

Antisynthetase syndrome

Synonyms: Anti-Jo1 syndrome, AS syndrome

Dermatomyositis

Synonyms: Adult dermatomyositis

Inclusion body myositis

Synonyms: IBM, Inflammatory myopathy, Sporadic inclusion body myositis

Juvenile dermatomyositis

Synonyms: JDM, Juvenile myositis, JPM

Juvenile polymyositis

Synonyms: Juvenile PM

Necrotizing autoimmune myopathy

Synonyms: Immune-mediated necrotizing myopathy, Anti-HMG-CoA myopathy, Anti-SRP myopathy, Autoimmune necrotizing myositis, IMNM, NAM, Immune myopathy with myocyte necrosis

Latest

Southampton City Council invite your views on their proposed budget

Have your say on draft budget proposals for 2020/21 and onwards to 2022/23
Carer Awareness

Carer Aware Learning Module produced by Southampton City Council in 2019
RemindMeCare

The RemindMecare app is a social impact project providing person-centred care and activity tools. Helps family members connect with people living with dementia and learning disabilities to build understanding between different generations, cultures and backgrounds. ReMe is free to those cared for at home.
South Western Railway

Accessibility information for South Western Railway

SWAN UK

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Niemann-Pick UK (NPUK)

NPUK provide practical and emotional support, advice and information to those affected by Niemann-Pick diseases and facilitate research into potential therapies..
Healthtalk

A website patient information sharing resource

Carers Cards

Save you money out and about and recognise your caring role
Carers Assessments
Current newsletter

Latest events and services from service providers, updates to legislation and benefits and consultations on issues relevant to carers
Contact us

How to get in touch with us
Emergency planning

Guidance on writing a plan for someone else to follow if something unexpected happens to you or if you are unable to carry on with your caring role due to a hospital stay, overseas family event etc.
How can we help?

Click to find quick links for free support, guidance, signposting, information, carers cards and carers assessments for carers
Is our service for you?

What do we mean by carer?
Club night for adults with learning disabilities

A club night especially for adults with learning disabilities at The Edge
Professional referral
Buzz Network

The Buzz Network is a group for Southampton parents/carers of children with disabilities/special needs. It is open to children with any disability from ADHD to visual impairments, as long as they meet the eligibility criteria.