Myositis UK

146 Newtown Road
Woolston
Southampton
SO19 9HR
United Kingdom
Telephone: 023 8044 9708
E-mail: [email protected]
Website: https://www.myositis.org.uk/

Supported Diseases

Amyopathic dermatomyositis

Synonyms: ADM, Dermatomyositis sine myositis

Antisynthetase syndrome

Synonyms: Anti-Jo1 syndrome, AS syndrome

Dermatomyositis

Synonyms: Adult dermatomyositis

Inclusion body myositis

Synonyms: IBM, Inflammatory myopathy, Sporadic inclusion body myositis

Juvenile dermatomyositis

Synonyms: JDM, Juvenile myositis, JPM

Juvenile polymyositis

Synonyms: Juvenile PM

Necrotizing autoimmune myopathy

Synonyms: Immune-mediated necrotizing myopathy, Anti-HMG-CoA myopathy, Anti-SRP myopathy, Autoimmune necrotizing myositis, IMNM, NAM, Immune myopathy with myocyte necrosis

Latest

Dementia Care Afternoon Tea

Dementia Workshop in partnership with Admiral Nurses & Dementia Navigators | Thursday 9th June
Carers Lunch | Debt Management Workshop with Christians Against Poverty

Join us for a Carers Lunch on Wednesday 8th June.
Occupational Therapy Workshop

Join us for this useful and practical workshop on Tuesday 7th June
Diabetes Awareness Morning with Special Guest

Join us as we welcome University Hospital Southampton's Diabetes Consultant, Dr Maynak Patel.

Conductive Care

Conductive Care provides one to one Conductive Education Sessions to children and young adults with neurological and mobility impairments, within their own home.
SWAN UK

Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Niemann-Pick UK (NPUK)

NPUK provide practical and emotional support, advice and information to those affected by Niemann-Pick diseases and facilitate research into potential therapies..
Healthtalk

A website patient information sharing resource

Carer's Cards

Save you money out and about and recognise your caring role
Carer's Assessments

Carer's assessments evaluate your need for support and services and eligibility for a personal wellbeing payment
Contact us

How to get in touch
Assisted Shopping - Sainsbury's Shop On-line and Telephone Service

Sainsbury's Assisted Shopping scheme helps people who are housebound, cannot travel to the shops or cannot manage online shopping by allowing them to make shopping orders over the telephone. You can access this service by calling 0800 328 1700, Mon-Fri 9am-5pm.
Southampton General Hospital Ward Numbers

This is a list of the contact telephone numbers for the main wards at University Hospital Southampton
What we offer

Click to find quick links for support workers, carers cards, emergency plans and carers assessments
Emergency planning

Being prepared for emergencies is always a good idea as a carer. Take a look below and help put some of your worries to rest.
Singing groups and choirs in Southampton

A new study identifies the healing power of singing in a group, and urges us all to have a go. A list of many choirs in Southampton can be found here.
Refer a Carer

We are open to referrals of adult unpaid carers for support, information, carers cards, emergency plans and statutory carers assessments.
Southampton City Council Adult Health & Social Care

If you are caring for an adult over 18, (including young carers), and are affected or needing to self isolate and you have no other additional social care you can contact Southampton City Council Adult Health & Social Care. Phone 023 8083 3003